Cystic Fibrosis Prognosis

Published: 27th June 2009
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Cystic fibrosis prognosis for patients has dramatically improved over the past few decades. Presently in the USA, the median age of survival is approximately 28 years. Although exocrine pancreatic function is predicted by genotype, it doesn't really correlate with the pulmonary status or the overall clinical effect.

The answer to good prognosis for this rare condition is early detections and proper treatment. The variety of options for the treatment and the efficacy of these methods has increased since the 1980s-1990s. A majority of the cystic fibrosis sufferers could live up to 30 years of age. Researchers also hold that people who were born in the 1990s could expect greater life expectancy up to the age of 40.

However, in spite of the significant developments in cystic fibrosis research and treatment in the past few decades, no concrete cure could be discovered. But still it can be rightly said that the prognosis is much better now than it was before. Patients can now expect a greater life expectancy and live many years as adults.

The Preceding Outlook on the Disease

Until very recently, cystic fibrosis diagnosis meant early death. A German saying holds that, "A child who tastes like salt when kissed on the forehead will soon die." Earlier in the 1950s, cystic fibrosis prognosis was totally negative and doctors usually predicted a life expectancy of not more than 7 years.

As cystic fibrosis was hardly known during that period of time and very little was known about the treatment, doctors could not help but have such an outlook of the condition. Most of the cases of the disease went misdiagnosed as chronic bronchitis, whooping cough or bronchitis. Such a mistake could not be established until it was very late.

Latest Discoveries Have Brought Dramatic Changes in the Outlook

Irrespective of the pessimism displayed by the doctors regarding cystic fibrosis, many of the doctors tried really hard to take proper care of the patients and to find out new and relevant information about the condition. Their efforts were also recognized and regarded, as prolonged research over the past few decades yielded significant discoveries on the cause and the workings of cystic fibrosis and also in improved ways of treating the same.

Among the various positive findings of the research work on the diseases, scientists have discovered a link between the secretions of the mucus, which are thick in the respiratory lining and the deficiency in enzymes produced by pancreas.

The most noteworthy discovery in this field however was the finding of cystic fibrosis trans-membrane conductance regulator (CFTR) gene. This remarkable discovery enabled the researcher to study the working conditions of this rare disease at the basic level and develop proper understanding of the same.

Researchers are still trying hard to find a proper cure for the disease. Nevertheless, they have also come up with a lot of significant advances that allow improved ways of diagnosing as well as treating patients.

There are a host of diagnosis and treatment plans available today including testing, antibiotics, physical therapy, genetics, lung transplants, proper nutrition for improving the condition.

Do you know someone who is suffering from Cystic Fibrosis and needs help; Didier will provide you with all the guidance that is required.

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